Beschreibung
The inclusion of children within epidemiological studies has been sustained by three main protective measures: proxy consent, assent and research classified as of minimal risk. These have raised issues centring on when the child should be considered able to decide on such participation. Studies on longitudinal birth cohort studies reveal that there exists a tension surrounding such issues. Since autonomy is regarded as necessary for informed consent, researchers have sought developmental theories that map cognitive abilities along a biological trajectory towards autonomy. Consequently, childrens competencies are seen as largely determined by natural causes. This book draws attention to the social constructiveness of concepts central to the childs decisional power. This is to underscore that technologies, such as biobanks, play a role in defining childhood, through the provision of a novel context in which to define the competencies of the child.
Autorenportrait
Born in Malta in 1987, Marie Claire Tonna has read for a degree in Social Anthropology at the University of Malta and has furthered her studies in undertaking a Masters in Science and Technology Policy and Management at the University of Edinburgh.